Well, the second cycle of the chemo is done and we came home on Sunday. Meg was so keen to get home, and had been told by one of the oncologists that there was a possibility that she could come home on Saturday, but the poor love had probably the worst day of nausea and vomiting that she's every had and the only way it could be controlled was to knock her out with strong drugs. She was so disappointed and we had a few tears, but fortunately her medication kicked in and she slept through the night (apart from the routine loo trips) and felt fine the next morning.
We're back on the injections in the leg every day to get her blood count up, but she seems to be tolerating them better this time. We just got back from her weekly trip to the hospital for a full blood count and she's very neutropenic again. I guessed that she was as her energy level has dropped quite a bit and she's feeling very tired. As we were on our way to hospital this morning she was very quiet and then suddenly sat up and looked at me. We were in the middle of heavy traffic and stuck on the middle lane of a three way highway. I asked her what was wrong and she said "I feel sick"... bit of a problem that as I had nothing with me for such an event. I couldn't pull over for her to get out of the car, so I went scrambling in my handbag and found a nylon shopping bag that I keep in there. So, the nylon shopping bag got it and she felt much better. It's hard to know if it was a late effect of the chemo or a bit of car sickness.
So...now the 2nd cycle of chemo is done, now we wait. Meg has a series of tests booked for the week of 9th Feb; blood tests, CT scan, bone scan, kidney function and hearing tests and THEN a decision will be made as to where we go from here. It will probably either be surgery to remove the diseased areas on her liver and lymph nodes, or more chemo. It's the waiting that drives us mad. All the parents I speak to at PMH oncology say the same - so much waiting and worrying.
While we've been home, and with the help of Nana, Meggie's room has had a bit of a spruce up and she now has some of the nice pink on her bedroom walls that Ellie has. Can't let nice pink paint go to waste eh!? Meg got into it and did a pretty good job with the roller! She's off to the movies this afternoon with Nana to see "Hotel for Dogs" and is really looking forward to that special treat - it's so much better when Nana takes her!
It's lovely to see all the comments that we're getting on this blog - thank you everyone for taking the time to read about our journey and for all your wonderful wishes. Please know that we read every single comment and are truly thankful for your caring......