Results

Hi Everyone

Its me Meggy!

I've had all my results and...................They are all clear! Every single one!!! YAY YAY YAY

We're going to celebrate by going to Sizzlers on Friday!
That's good news for me. I am going to go in for monthly blood tests and then see what happens from then on. I think i'm doing really well and i deserve to get a horse!! :):):) ha ha( don't tell mum that!)

Talk to you later bye
xxxxxxxxxxxxxxxxxxxxx

"Sigh"......

We're back to PMH tomorrow and starting all of Meggie's tests. CT scan, bone scan, kidney function, hearing test, blood tests..... and then the waiting for the results.........It all sounds pretty straightforward but there are a lot of needles, infusions of tracers and blood taking involved, so Meg's not looking forward to it at all.


I had a "meltdown" again this morning. It came from nowhere and it's many hours later now and I still feel so......not sure what the word is........dread-ful, as in, full of dread.....and afraid....... I suppose it's because I know that we're coming closer to knowing whether the chemo and surgery have done what we want them to do, and if they have, which I'm fully expecting, then we're going to be watching, worrying and waiting every month for the results of blood tests. I know that sounds terribly negative, and most of the time, I'm really not negative. I'm just so scared.....



Meg's had lots of fun during the time we're been free of hospital visits (almost three weeks!) She's had two whole weeks at school and she's started riding lessons, and spends as much tme as she can at the stables, looking after the horses, mucking out, tacking up and generally learning about the groundwork of horse care. She even has her own jodphurs and looks fab in them! The other girls at the stables are really lovely to Meg, and she feels very welcome there. Yesterday I took her for her riding lesson at 8am and she spent the rest of the day helping out, and got a free ride at the end of the day and did her first jump which she was absolutely delighted about. Phil went to collect her and it was pouring with rain so when she called me from the car after the ride I asked her if she was drenched and she said she was so I said I'd have a nice warm bath ready for her when she got home. She said "No! I want to keep smelling like horse!!" How gorgeous......

And we thought we were done......

Meggie came home last Wednesday after having her "last" cycle of chemo. She was doing pretty well. She still had some nausea and her energy levels were a bit low but she soon picked up when I arranged for her to have her first horseriding lesson on Wednesday! She also went to the riding stables on Saturday as a "warm up" to help out and do some ground work; tacking up, grooming etc. She was in her element!! Unfortunately her nausea kicked in around lunchtime and she needed to come home. This was obviously a sign of things to come......... She remained pretty low for the rest of the day with no appetite, but no temperature, but by Sunday morning she was feeling worse. Her temp started creeping up so we called the hospital and were told to bring her in. By the time we got here her temp was 40.3 degrees C (or 104.5 degrees F if you still use that!) She was really sick. She said she was freezing cold but to the touch her skin was roasting. She was immediately given a dose of antibiotics and then put onto an IV. She was very neutropenic (i.e. no immunity) and anaemic. So much so that she ended up having four units of blood transfused throughout the whole of the night. By yesterday morning she was so much better. Her temp had gone right down and after having all that blood she was feeling great. We're still in PMH at the moment. She needs to be clear of a temperature for 48 hours before they're happy for her to go home. The also need to get the results of her blood cultures to see if there is an infection in her infusaport which may have caused her infection..... So we're waiting for these results now and if we get to 6pm this evening without a temp spike and as long as her blood cultures are negative, we should be able to get out......fingers crossed! We have to be out in time for tomorrow's riding lesson!

It's really ironic.....Throughout all of the chemo that Meg's had, she's never once had a temperature that caused her to be admitted, and she's never needed blood transfusions (other than during her surgeries), and now after her last chemo, she gets both! We're just very lucky that she's been as well as she has between all of her treatment, and that we've only had to do this once in the last 16 months.......

We're back in to PMH on 22nd and 23rd June for all of her final tests; bone scan, CT scan, kidney function test, hearing test and bloods. A week later we'll meet with Meg's oncologist to find out the results. THAT will be a big day, and hopefully one full of good, positive news..........